LIFE AFTER OLMSTEAD: WE ARE THE

WE ARE THE VOICE CAMPAIGN

Overview of ISP’s Political Demands:
We Are the Voice
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Protect Voting Rights for Disabled People
We demand that voting be made more accessible on the state level by expanding required training for care staff and providers to include explicit explanations of the civil and human rights retained by people under guardianship and related programs. Create a state-level role to oversee civil rights for long-term care facilities and conduct audits to ensure that these are respected.
Center Disabled Voices in the Conversation about the Medicaid Waiver Program
We demand that care plans for disabled people living under the waiver program be more individualized to follow the recommendations of their care team. Increase the flexibility of waiver programs to reflect the dynamic nature of disabled people’s care needs. We need more care at some times than others, and waiver provisions do not accommodate this. Care needs fluctuate and do not follow a schedule, so the waivers need to allow for increased flexibility in time and cost provisions.
Amend the Guardianship Statute to Mandate that All Other Options be Explored Before Entering the Guardianship Process
As the law is presently written, there are no requirements or standard assessments to determine eligibility for guardianship. Disabled Kentuckians are put under guardianship at a rate double the national average (National Core Indicators, 2025). There is no unified record of Kentuckians under guardianship. All these issues must be addressed to ensure that disabled Kentuckians have their rights respected. Guardianship should never be the first option for people in need of care.

LIFE AFTER OLMSTEAD
In Fall 2025, we embarked on the journey of understanding life post the Olmstead decision of 1999, which ruled that unjustified segregation of people with disabilities in institutions is illegal discrimination under the Americans with Disabilities Act (ADA).
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Many face the challenge of balancing access to care with personal freedom as a major theme of their daily lives. This was an opportunity to hear not just our stories, but also to document the growth of our movement away from state- sanctioned care, that leans into the impact and resources of community- building and follows a critical shift in our paradigm!
Directed by Sylvia Witt and Co-Created by Amanda Stahl
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Produced by the Independence Seekers Project
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Featuring Chris Hartman, Alex Croley, Corey Nett & Wendy, and Kay Diggs
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